Friday 19 October 2018

Guest Blog

It’s 12 months since I joined Pennine Care as Chair, so I thought it was a good time to write a blog.

So much has happened over the last year, with a lot of work on developing our new strategy, culture and the refreshed vision and values to support this. I’ve also had the opportunity to get out and about and visit many different teams, which is without question the best part of my job. I never cease to be impressed, humbled and full of admiration for what you do, day in and day out.

There’s so much more I want to learn about the services you deliver, how your teams work, and the fantastic people that work here.  But I also think it might be helpful to learn some more about me.

So, I’m taking this opportunity to reveal something about myself.

Something personal which has had a huge impact on my life. Something which will hopefully help those who already know me or will meet me soon – and also those who welcome an open and honest message about understanding and respecting everyone as individuals, whatever our challenges.

It’s also important we all feel safe, comfortable and supported if we open up about personal information. Especially when we work for an organisation such as ours.

You see, I’ve been managing a long term health condition whilst holding down a high profile role

Two years ago I had heart failure.

I hate the word 'failure' to describe my living, beating heart, but when I asked another doctor how he'd describe what happened he called it 'heart inadequacy’ which is worse!

Its sometimes easy to forget the psychological impact of a ‘label’, until its ours to wear.

I was visiting Ghana when it happened. I’ve got diabetes and high blood pressure runs in my family, but I started to take a lot of extra medication on this holiday as I was feeling really rotten.

A few days after I returned home, I woke  one morning and was struggling to breathe. It was scary enough for me to visit my GP, and before I knew it I was in an ambulance rushing to the MRI. I was in hospital for 10 days, and the care was amazing. We all know how wonderful the NHS is and how lucky we are to have it.

I now have to take 14 tablets every day, which I find both stressful and tedious. I line them up in pairs, according to their shape – anything to make it feel less of a daily trial.

Only four out of the 14 have side effects, but they are gruelling side-effects and take their toll. That means, especially with sometimes very long days of meetings, that I can struggle.

My mind is fine, it’s just my body that lets me down, but the drugs do mean that I struggle. And it does get me down.

I tell you this in the spirit of openness and caring about the impact it can have on our family, friends and colleagues and so you have more of an understanding about why sometimes I may appear fazed.

I have four children who worry, my son just wants the doctors to ‘fix me’ my eldest daughter practically moved in when I came out of hospital, my middle and youngest daughters worried for some time whenever I went to the GP in case I ended up in A&E again and my adorable grandchildren (6 & 7) worry about me dying.

We also laugh about it though, as there are plenty of funny moments. My relationship with lifts and stairs, and my reaction to being advised to get a ‘blue badge’ are just a couple they tease me about.

Laughing is a good medicine, but one of the best things is that when needed I can indulge in my ‘guilty pleasure’ TV court shows - Judge Judy, People’s Court, Paternity Court and judge Rinder – without feeling I should be ‘up and about’ busying myself all the time.

So, I’ve opened up my ‘weak’ heart to you all. It’s still bursting with pride to be part of our fantastic organisation.   I just want you to know that my passion for and commitment to the Trust is strong and I will work to ensure that I carry out my role effectively.

Thank you for reading.

Evelyn Asante-Mensah MBE
Chair

20 comments:

  1. Thank you for sharing your story and for your honesty.

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    1. Thank you so much for taking the time to read my blog and respond.
      Best wishes
      Evelyn

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  2. Wow, thank you Evelyn, that has set the most compassionate and open tone to my Friday #penninecare #doescare

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    1. Thank you very much for taking the time to reading my blog I hope sharing will support others to feel they can be open too.
      With best wishes
      Evelyn

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  3. Thank you, Vey Brave lady, very inspiring.. Openness I believe needs to be real and your blog is very real. Openness will breed openness.
    Thanks again

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    1. Thank you very much for taking the time to read my blog and I really hope that my openness will help to breed openness within our organisation.
      With best wishes
      Evelyn

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  4. thank you for sharing your heartfelt account. It does make a difference when people in high profile positions share their experience. It makes the 'common man' feel that yes, people high above do understand.

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    1. Thank you for taking the time to read my blog and for your words. It was important for me to share my experience as it is part of who I am. I have had such lovely support. Makes me very proud to be part of such a caring organisation.

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  5. Great blog. Enjoyed reading it. Stay strong. Kind regards Julia

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    1. Thank you for taking the time to read my blog Julia and thank you for your words.
      With best wishes
      Evelyn

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  6. Thank you for sharing your story. I can imagine it takes a lot of courage to do this. It must be really tough trying to cope with your health as well as working. The great thing is the family support you have to see through your recovery journey. Wishing you all the best

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    1. Thank you very much Eunice for reading my blog and taking the time to respond. My family have been a great source of support as have colleagues at the Trust, which has been great.
      Best wishes
      Evelyn

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  7. Thank you for sharing your story. I have had some difficulties of my own and found it hard to say "I am not ok" as I felt it was a reflection of my ability. Ability for everything! A mum, a partner, an employee. Sometimes, health troubles can cause disruption but the individual is still "able". With support from friends and colleagues the individual can gain strength but openness and communication with others is key.
    Wishing you all the best with your future health.

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    1. Thank you for taking the time to read my blog and to respond and share some of your experience. Openness is so important as that's the only way our friends and colleagues can know how best to support us when we are maybe not feeling ok.
      With best wishes
      Evelyn

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  8. Totally agree with the other comments. This is a wonderful and truly inspiring blog in terms of honesty and openness, which will help build greater compassion and understanding in so many different ways.

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  9. Wow - wishing you all the very best Evelyn! Stay strong.

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    1. Thank you for taking the time to read my blog and for your kind words.
      With best wishes
      Evelyn

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  10. This is an inspiring story, that gives hope and courage to everyone.
    Above all the kids are wonderful.
    May God gives you good health and wellbeing.

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  11. Inspirational... we have an amazing NHS which I personally am truly thankful for too! We all need to ensure that our NHS remains a strong and reliable service available to all... With a strong and beating heart.

    Thank you for sharing your story.

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